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Ultragenyx Will be Celebrating Patient Day For Patients With Rare Diseaes

The bio-pharmaceutical company Ultragenyx will celebrate   Patient Day with patients and families  of rare diseases.  This is our chance to meet and celebrate our "rareness" with others.The deadline for travel scholarship was March 14th, however you may want to try to register and see what happens.  Please refer to the link below for additional information.  This would be another opportunity for gne-myopathy patients to get to know each other.   

When:    Saturday, April 11, 2015 from 11:00 AM - 3:00 PM PDT
Where:  Ultragenyx Pharmaceutical Inc. Headquarters
60 Leveroni Court, Novato, CA 94949
Ultragenyx Patient Day is held to honor patients with rare diseases. Please join us for a fun-filled day of food, games, refreshments, live music and much more. Kids are welcome to attend!
*Bounce House *Face Paint *Tattoos *Video Game Truck
  • 11:30 AM - Buffet Opens
  • 12:30 PM - 1:30 PM - Presentations on Stage
  • 1:30 PM - 3:00 PM - Entertainment including live music
Travel Scholarship Information
A limited number of travel scholarships will be given. Requirements are as follows:
  • Be a patient, or 
  • Be a family member, or
  • Involved in a patient organization

Please click on the registration link below to be considered for a travel scholarship. Rx Worldwide Meetings, Inc. is the designated meeting planner for this event and will be assisting you with any special requirements, as well as hotel accomodations and transportation. Rx Worldwide Meetings will send travel requests to Ultragenyx for scholarship selections. The Deadline for scholarship consideration is March 14th, 2015. For any questions, please contact ultragenyxpatientday@rx-worldwide.com or patientday@ultragenyx.com.

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